BHARE Foundation

Spring, 2019

Dear BHARE Foundation supporter,

Did you know that as of today there is not one FDA approved drug to treat autism? We know there are gastrointestinal problems, anxiety issues, OCD concerns, self-abusive and other dangerous behaviors that accompany this disease. I thought when we started this quest for a cure 20 years ago, we would have multiple treatments or even a cure by now. The fact that no treatment exists specifically for autism is one that needs to change.

Because of a lack of a breakthrough, I have wanted to give up several times. As a percentage of research dollars, both governmental and private, autism research remains woefully underfunded. When I feel frustrated and angry, something always motivates me to continue this important work. We MUST continue searching for a treatment or cure until we have succeeded. A few months ago, I read a story about a 13 year old student with autism who died after being restrained at the school he was attending. He most likely suffocated due to the face down position he was placed in by the school staff. This death is almost identical to the case of Hansel Cunnigham. He was an adult with autism who lived in a group home in a Chicago suburb. Mr. Cunnigham was suffocated by first responders over 10 years ago. If this had happened to a cancer or stroke patient there would be an uproar. But because it was someone that was being aggressive due to their disability, it was somehow hardly newsworthy. One of the most important ways we can prevent these tragedies from occurring in the future, is to develop a treatment so that people with autism can have better self-control and therefore help them avoid these dangerous outbursts.

As noted last year, our focus is now on Dr. Robert Naviaux, who believes people with autism are trapped in a type of “fight or flight” phase. In 2017 he published a study in which he treated 5 subjects with a medication called Suramin. This drug signals the body to switch to a “rest and digest” phase, which promotes healing, growth, and normal neurodevelopment. All 5 children in the study displayed improvements in language, social interaction, and a decrease in restrictive or repetitive behaviors. His written proposal to The BHARE Foundation is for $75,000, to fund the measuring of metabolomics for phase II of this study. Measuring the metabolomics will tell us exactly what changed in each subject, and help researchers understand why the treatment works on some, but not others.

April is autism awareness month. Help us reach our goal of $20,000 in donations for the month. Please call or e-mail and commit to volunteering one or two hours to help us with Tag Days on April 20th, May 25th, June 22nd, or August 17th. Your help makes a big difference and what you do does matter. In the movie musical “Mulan”, the Emperor of China says, “A single grain of rice can tip the scales. One man may be the difference between victory and defeat.”

Over the years I have learned that patience is needed for science, but also that money gets it done. Please make a difference and help us fund this study. Remember to ask your employer if they have a matching grant program. Many companies have these programs and the Foundation has benefited greatly from them. It would be remarkable if we could provide the seed money that results in the spark that helps fund research that produces the first FDA approved treatment for autism. Your help does make a difference and is greatly appreciated.

Thank you,

Bram Hornstein
The BHARE Foundation


First Steps Toward a Real Treatment for Autism.

Published in January 2017

The BHARE Foundation is pleased to note that they provided funding for basic scientific research to Profs. Adams and Krajmalnik-Brown, and that basic research provided critical data that helped justify the need for FMT and helped win FDA approval for the clinical trial.

Read the full study here: http://microbiomejournal.biomedcentral.com/articles/10.1186/s40168-016-0225-7

2 year follow up study shows very promising results

https://asunow.asu.edu/20190409-discoveries-autism-symptoms-reduced-nearly-50-percent-two-years-after-fecal-transplant


Folinic Acid Study

With your support, BHARE has been able to fund another positive study that was published this year. Please take a look at the tremendous effect you are creating by helping us fund research.

Folinic Acid Study